Accessible Funerals and People with Intellectual Disability

Rachel Forrester-Jones; Philip McCallion; Mary McCarron; Roger J. Stancliffe; Michele Y. Wiese

doi:10.1007/978-3-030-98697-1_10

Accessible Funerals and People with Intellectual Disability

Rachel Forrester-Jones, Philip McCallion, Mary McCarron, Roger J. Stancliffe, Michele Y. Wiese

Institute on Community Integration

Research output: Chapter in Book/Report/Conference proceeding › Chapter

3 Scopus citations

Abstract

This chapter briefly outlines Western funeral practices and then describes how funeral participation is important to successful grieving and meaning making of others’ death. It examines research on funeral attendance and barriers, involving adults with intellectual disability. COVID-19 has restricted funeral participation for all, highlighting how people with disabilities have often been excluded from these rituals long before the pandemic. Experiences of both exclusion and participation are conveyed in several individual stories. The significance of emotional, social and spiritual supports linked to funerals (and the impact of being denied these) is discussed so that people with disabilities can be better supported to engage with and meaningfully participate in others’ funerals, and have a say in their own funeral arrangements if they wish to. A list of resources is provided.

Original language	English (US)
Title of host publication	End of Life and People with Intellectual and Developmental Disability
Subtitle of host publication	Contemporary Issues, Challenges, Experiences and Practice
Publisher	Springer International Publishing
Pages	265-296
Number of pages	32
ISBN (Electronic)	9783030986971
ISBN (Print)	9783030986964
DOIs	https://doi.org/10.1007/978-3-030-98697-1_10
State	Published - Jan 1 2022

Bibliographical note

Publisher Copyright:
© The Editor(s) (if applicable) and The Author(s), under exclusive license to Springer Nature Switzerland AG 2022.

Keywords

Attendance
Barriers
Death
Dying
End of life
Funeral
Grief
Intellectual and developmental disability
Intellectual disability
Meaning
Meaning making
Mourners
Participation
Ritual
Spirituality
Wake

Access

10.1007/978-3-030-98697-1_10

OpenUrl availability

Full text

Cite this

Forrester-Jones, R., McCallion, P., McCarron, M., Stancliffe, R. J., & Wiese, M. Y. (2022). Accessible Funerals and People with Intellectual Disability. In End of Life and People with Intellectual and Developmental Disability: Contemporary Issues, Challenges, Experiences and Practice (pp. 265-296). Springer International Publishing. https://doi.org/10.1007/978-3-030-98697-1_10

Accessible Funerals and People with Intellectual Disability. / Forrester-Jones, Rachel; McCallion, Philip; McCarron, Mary et al.
End of Life and People with Intellectual and Developmental Disability: Contemporary Issues, Challenges, Experiences and Practice. Springer International Publishing, 2022. p. 265-296.

Research output: Chapter in Book/Report/Conference proceeding › Chapter

@inbook{c848ae49964a444c8b05472d57622adc,

title = "Accessible Funerals and People with Intellectual Disability",

abstract = "This chapter briefly outlines Western funeral practices and then describes how funeral participation is important to successful grieving and meaning making of others{\textquoteright} death. It examines research on funeral attendance and barriers, involving adults with intellectual disability. COVID-19 has restricted funeral participation for all, highlighting how people with disabilities have often been excluded from these rituals long before the pandemic. Experiences of both exclusion and participation are conveyed in several individual stories. The significance of emotional, social and spiritual supports linked to funerals (and the impact of being denied these) is discussed so that people with disabilities can be better supported to engage with and meaningfully participate in others{\textquoteright} funerals, and have a say in their own funeral arrangements if they wish to. A list of resources is provided.",

keywords = "Attendance, Barriers, Death, Dying, End of life, Funeral, Grief, Intellectual and developmental disability, Intellectual disability, Meaning, Meaning making, Mourners, Participation, Ritual, Spirituality, Wake",

author = "Rachel Forrester-Jones and Philip McCallion and Mary McCarron and Stancliffe, {Roger J.} and Wiese, {Michele Y.}",

note = "Publisher Copyright: {\textcopyright} The Editor(s) (if applicable) and The Author(s), under exclusive license to Springer Nature Switzerland AG 2022.",

year = "2022",

month = jan,

day = "1",

doi = "10.1007/978-3-030-98697-1_10",

language = "English (US)",

isbn = "9783030986964",

pages = "265--296",

booktitle = "End of Life and People with Intellectual and Developmental Disability",

publisher = "Springer International Publishing",

}

TY - CHAP

T1 - Accessible Funerals and People with Intellectual Disability

AU - Forrester-Jones, Rachel

AU - McCallion, Philip

AU - McCarron, Mary

AU - Stancliffe, Roger J.

AU - Wiese, Michele Y.

N1 - Publisher Copyright: © The Editor(s) (if applicable) and The Author(s), under exclusive license to Springer Nature Switzerland AG 2022.

PY - 2022/1/1

Y1 - 2022/1/1

N2 - This chapter briefly outlines Western funeral practices and then describes how funeral participation is important to successful grieving and meaning making of others’ death. It examines research on funeral attendance and barriers, involving adults with intellectual disability. COVID-19 has restricted funeral participation for all, highlighting how people with disabilities have often been excluded from these rituals long before the pandemic. Experiences of both exclusion and participation are conveyed in several individual stories. The significance of emotional, social and spiritual supports linked to funerals (and the impact of being denied these) is discussed so that people with disabilities can be better supported to engage with and meaningfully participate in others’ funerals, and have a say in their own funeral arrangements if they wish to. A list of resources is provided.

AB - This chapter briefly outlines Western funeral practices and then describes how funeral participation is important to successful grieving and meaning making of others’ death. It examines research on funeral attendance and barriers, involving adults with intellectual disability. COVID-19 has restricted funeral participation for all, highlighting how people with disabilities have often been excluded from these rituals long before the pandemic. Experiences of both exclusion and participation are conveyed in several individual stories. The significance of emotional, social and spiritual supports linked to funerals (and the impact of being denied these) is discussed so that people with disabilities can be better supported to engage with and meaningfully participate in others’ funerals, and have a say in their own funeral arrangements if they wish to. A list of resources is provided.

KW - Attendance

KW - Barriers

KW - Death

KW - Dying

KW - End of life

KW - Funeral

KW - Grief

KW - Intellectual and developmental disability

KW - Intellectual disability

KW - Meaning

KW - Meaning making

KW - Mourners

KW - Participation

KW - Ritual

KW - Spirituality

KW - Wake

UR - http://www.scopus.com/inward/record.url?scp=85137367192&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85137367192&partnerID=8YFLogxK

U2 - 10.1007/978-3-030-98697-1_10

DO - 10.1007/978-3-030-98697-1_10

M3 - Chapter

AN - SCOPUS:85137367192

SN - 9783030986964

SP - 265

EP - 296

BT - End of Life and People with Intellectual and Developmental Disability

PB - Springer International Publishing

ER -

Accessible Funerals and People with Intellectual Disability

Abstract

Bibliographical note

Keywords

Access

OpenUrl availability

Other files and links

Fingerprint

Cite this