Characteristics of adults with autism spectrum disorder who use adult developmental disability services: Results from 25 US states

Amy S. Hewitt; Roger J. Stancliffe; Annie Johnson Sirek; Jennifer Hall-Lande; Sarah Taub; Joshua Engler; Julie Bershadsky; Jon Fortune; Charles R. Moseley

doi:10.1016/j.rasd.2011.10.007

Characteristics of adults with autism spectrum disorder who use adult developmental disability services: Results from 25 US states

Amy S. Hewitt, Roger J. Stancliffe, Annie Johnson Sirek, Jennifer Hall-Lande, Sarah Taub, Joshua Engler, Julie Bershadsky, Jon Fortune, Charles R. Moseley

Institute on Community Integration

Research output: Contribution to journal › Article › peer-review

18 Scopus citations

Abstract

There is a significant increase in the prevalence of autism and autism spectrum disorders (ASD) in children with estimates now reaching 1 in 110 children in the United States. Families report difficulties in finding services for their young and adult children. Many adults with ASD receive services and supports through state intellectual and developmental disabilities (IDD) adult service systems. This study presents descriptive data on a random sample of 12,382 individual users of adult IDD services from 25 states that included 1002 individuals with an autism diagnosis (8.1%). Data are provided on demographic characteristics, diagnoses, communication and relationship status for adults with autism/ASD and a comparison of these findings for IDD service users who have other diagnoses.

Original language	English (US)
Pages (from-to)	741-751
Number of pages	11
Journal	Research in Autism Spectrum Disorders
Volume	6
Issue number	2
DOIs	https://doi.org/10.1016/j.rasd.2011.10.007
State	Published - Apr 2012

Bibliographical note

Funding Information:
Preparation of this paper was supported by Grant #H133G080029 from the National Institute on Disability and Rehabilitation Research , U.S. Department of Education (Federal funds for this three year project total $599,998 (99.5% of the total program costs, with 0% funded by non-governmental sources)).

Copyright:
Copyright 2012 Elsevier B.V., All rights reserved.

Keywords

Autism spectrum disorder
Intellectual disabilities

Access

10.1016/j.rasd.2011.10.007

OpenUrl availability

Full text

Cite this

Hewitt, A. S., Stancliffe, R. J., Johnson Sirek, A., Hall-Lande, J., Taub, S., Engler, J., Bershadsky, J., Fortune, J., & Moseley, C. R. (2012). Characteristics of adults with autism spectrum disorder who use adult developmental disability services: Results from 25 US states. Research in Autism Spectrum Disorders, 6(2), 741-751. https://doi.org/10.1016/j.rasd.2011.10.007

Hewitt, AS, Stancliffe, RJ, Johnson Sirek, A, Hall-Lande, J, Taub, S, Engler, J, Bershadsky, J, Fortune, J & Moseley, CR 2012, 'Characteristics of adults with autism spectrum disorder who use adult developmental disability services: Results from 25 US states', Research in Autism Spectrum Disorders, vol. 6, no. 2, pp. 741-751. https://doi.org/10.1016/j.rasd.2011.10.007

@article{aa59ab73deba4df9921cd98bddb919e3,

title = "Characteristics of adults with autism spectrum disorder who use adult developmental disability services: Results from 25 US states",

abstract = "There is a significant increase in the prevalence of autism and autism spectrum disorders (ASD) in children with estimates now reaching 1 in 110 children in the United States. Families report difficulties in finding services for their young and adult children. Many adults with ASD receive services and supports through state intellectual and developmental disabilities (IDD) adult service systems. This study presents descriptive data on a random sample of 12,382 individual users of adult IDD services from 25 states that included 1002 individuals with an autism diagnosis (8.1%). Data are provided on demographic characteristics, diagnoses, communication and relationship status for adults with autism/ASD and a comparison of these findings for IDD service users who have other diagnoses.",

keywords = "Autism spectrum disorder, Intellectual disabilities",

author = "Hewitt, {Amy S.} and Stancliffe, {Roger J.} and {Johnson Sirek}, Annie and Jennifer Hall-Lande and Sarah Taub and Joshua Engler and Julie Bershadsky and Jon Fortune and Moseley, {Charles R.}",

note = "Funding Information: Preparation of this paper was supported by Grant #H133G080029 from the National Institute on Disability and Rehabilitation Research , U.S. Department of Education (Federal funds for this three year project total $599,998 (99.5% of the total program costs, with 0% funded by non-governmental sources)). Copyright: Copyright 2012 Elsevier B.V., All rights reserved.",

year = "2012",

month = apr,

doi = "10.1016/j.rasd.2011.10.007",

language = "English (US)",

volume = "6",

pages = "741--751",

journal = "Research in Autism Spectrum Disorders",

issn = "1750-9467",

publisher = "Elsevier BV",

number = "2",

}

TY - JOUR

T1 - Characteristics of adults with autism spectrum disorder who use adult developmental disability services

T2 - Results from 25 US states

AU - Hewitt, Amy S.

AU - Stancliffe, Roger J.

AU - Johnson Sirek, Annie

AU - Hall-Lande, Jennifer

AU - Taub, Sarah

AU - Engler, Joshua

AU - Bershadsky, Julie

AU - Fortune, Jon

AU - Moseley, Charles R.

N1 - Funding Information: Preparation of this paper was supported by Grant #H133G080029 from the National Institute on Disability and Rehabilitation Research , U.S. Department of Education (Federal funds for this three year project total $599,998 (99.5% of the total program costs, with 0% funded by non-governmental sources)). Copyright: Copyright 2012 Elsevier B.V., All rights reserved.

PY - 2012/4

Y1 - 2012/4

N2 - There is a significant increase in the prevalence of autism and autism spectrum disorders (ASD) in children with estimates now reaching 1 in 110 children in the United States. Families report difficulties in finding services for their young and adult children. Many adults with ASD receive services and supports through state intellectual and developmental disabilities (IDD) adult service systems. This study presents descriptive data on a random sample of 12,382 individual users of adult IDD services from 25 states that included 1002 individuals with an autism diagnosis (8.1%). Data are provided on demographic characteristics, diagnoses, communication and relationship status for adults with autism/ASD and a comparison of these findings for IDD service users who have other diagnoses.

AB - There is a significant increase in the prevalence of autism and autism spectrum disorders (ASD) in children with estimates now reaching 1 in 110 children in the United States. Families report difficulties in finding services for their young and adult children. Many adults with ASD receive services and supports through state intellectual and developmental disabilities (IDD) adult service systems. This study presents descriptive data on a random sample of 12,382 individual users of adult IDD services from 25 states that included 1002 individuals with an autism diagnosis (8.1%). Data are provided on demographic characteristics, diagnoses, communication and relationship status for adults with autism/ASD and a comparison of these findings for IDD service users who have other diagnoses.

KW - Autism spectrum disorder

KW - Intellectual disabilities

UR - http://www.scopus.com/inward/record.url?scp=81055136667&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=81055136667&partnerID=8YFLogxK

U2 - 10.1016/j.rasd.2011.10.007

DO - 10.1016/j.rasd.2011.10.007

M3 - Article

AN - SCOPUS:81055136667

SN - 1750-9467

VL - 6

SP - 741

EP - 751

JO - Research in Autism Spectrum Disorders

JF - Research in Autism Spectrum Disorders

IS - 2

ER -

Characteristics of adults with autism spectrum disorder who use adult developmental disability services: Results from 25 US states

Abstract

Bibliographical note

Keywords

Access

OpenUrl availability

Other files and links

Fingerprint

Cite this