TY - JOUR
T1 - Citizen science to further precision medicine
T2 - From vision to implementation
AU - Petersen, Carolyn
AU - Austin, Robin R.
AU - Backonja, Uba
AU - Campos, Hugo
AU - Chung, Arlene E.
AU - Hekler, Eric B.
AU - Hsueh, Pei Yun S.
AU - Kim, Katherine K.
AU - Pho, Anthony
AU - Salmi, Liz
AU - Solomonides, Anthony
AU - Valdez, Rupa S.
N1 - Publisher Copyright:
© The Author(s) 2019.
PY - 2021
Y1 - 2021
N2 - The active involvement of citizen scientists in setting research agendas, partnering with academic investigators to conduct research, analyzing and disseminating results, and implementing learnings from research can improve both processes and outcomes. Adopting a citizen science approach to the practice of precision medicine in clinical care and research will require healthcare providers, researchers, and institutions to address a number of technical, organizational, and citizen scientist collaboration issues. Some changes can be made with relative ease, while others will necessitate cultural shifts, redistribution of power, recommitment to shared goals, and improved communication. This perspective, based on a workshop held at the 2018 AMIA Annual Symposium, identifies current barriers and needed changes to facilitate broad adoption of a citizen science-based approach in healthcare.
AB - The active involvement of citizen scientists in setting research agendas, partnering with academic investigators to conduct research, analyzing and disseminating results, and implementing learnings from research can improve both processes and outcomes. Adopting a citizen science approach to the practice of precision medicine in clinical care and research will require healthcare providers, researchers, and institutions to address a number of technical, organizational, and citizen scientist collaboration issues. Some changes can be made with relative ease, while others will necessitate cultural shifts, redistribution of power, recommitment to shared goals, and improved communication. This perspective, based on a workshop held at the 2018 AMIA Annual Symposium, identifies current barriers and needed changes to facilitate broad adoption of a citizen science-based approach in healthcare.
KW - Citizen science
KW - Community participation
KW - Consumer involvement
KW - Healthcare systems
KW - Patient acceptance of healthcare
KW - Research methodology
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UR - http://www.scopus.com/inward/citedby.url?scp=85100815165&partnerID=8YFLogxK
U2 - 10.1093/JAMIAOPEN/OOZ060
DO - 10.1093/JAMIAOPEN/OOZ060
M3 - Review article
AN - SCOPUS:85100815165
SN - 2574-2531
VL - 3
SP - 2
EP - 8
JO - JAMIA Open
JF - JAMIA Open
IS - 1
ER -
