Dermatology Life Quality Index survey in patients with Down syndrome and caregivers

Morgan Dykman; Madison Ernst; Tasya Rakasiwi; Amy Buros Stein; David J. Satin; Kristen E. Holland; Stephanie L. Santoro; Jillian F. Rork

doi:10.1111/pde.15593

Dermatology Life Quality Index survey in patients with Down syndrome and caregivers

Morgan Dykman, Madison Ernst, Tasya Rakasiwi, Amy Buros Stein, David J. Satin, Kristen E. Holland, Stephanie L. Santoro, Jillian F. Rork

Family Medicine and Community Health (Twin Cities)

Research output: Contribution to journal › Article › peer-review

Abstract

Down syndrome (DS) is associated with many dermatological conditions, including hidradenitis suppurativa, folliculitis, and alopecia areata. Despite the high incidence of skin conditions in this population, there are no quality of life (QoL) studies in the dermatology literature focused on patients with DS or their caregivers. The frequently used QoL assessment tool, the Dermatology Life Quality Index (DLQI), has yet to be studied in this population. This study addresses these disparities by capturing how various skin conditions affect the QoL of people with DS and their caregivers and assessing the utility of the DLQI.

Original language	English (US)
Journal	Pediatric Dermatology
DOIs	https://doi.org/10.1111/pde.15593
State	Accepted/In press - 2024

Bibliographical note

Publisher Copyright:
© 2024 Wiley Periodicals LLC.

Keywords

Down syndrome
genetic diseases/mechanisms
quality of life

PubMed: MeSH publication types

Journal Article

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10.1111/pde.15593

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title = "Dermatology Life Quality Index survey in patients with Down syndrome and caregivers",

abstract = "Down syndrome (DS) is associated with many dermatological conditions, including hidradenitis suppurativa, folliculitis, and alopecia areata. Despite the high incidence of skin conditions in this population, there are no quality of life (QoL) studies in the dermatology literature focused on patients with DS or their caregivers. The frequently used QoL assessment tool, the Dermatology Life Quality Index (DLQI), has yet to be studied in this population. This study addresses these disparities by capturing how various skin conditions affect the QoL of people with DS and their caregivers and assessing the utility of the DLQI.",

keywords = "Down syndrome, genetic diseases/mechanisms, quality of life",

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note = "Publisher Copyright: {\textcopyright} 2024 Wiley Periodicals LLC.",

year = "2024",

doi = "10.1111/pde.15593",

language = "English (US)",

journal = "Pediatric Dermatology",

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AU - Dykman, Morgan

AU - Ernst, Madison

AU - Rakasiwi, Tasya

AU - Buros Stein, Amy

AU - Satin, David J.

AU - Holland, Kristen E.

AU - Santoro, Stephanie L.

AU - Rork, Jillian F.

PY - 2024

Y1 - 2024

N2 - Down syndrome (DS) is associated with many dermatological conditions, including hidradenitis suppurativa, folliculitis, and alopecia areata. Despite the high incidence of skin conditions in this population, there are no quality of life (QoL) studies in the dermatology literature focused on patients with DS or their caregivers. The frequently used QoL assessment tool, the Dermatology Life Quality Index (DLQI), has yet to be studied in this population. This study addresses these disparities by capturing how various skin conditions affect the QoL of people with DS and their caregivers and assessing the utility of the DLQI.

AB - Down syndrome (DS) is associated with many dermatological conditions, including hidradenitis suppurativa, folliculitis, and alopecia areata. Despite the high incidence of skin conditions in this population, there are no quality of life (QoL) studies in the dermatology literature focused on patients with DS or their caregivers. The frequently used QoL assessment tool, the Dermatology Life Quality Index (DLQI), has yet to be studied in this population. This study addresses these disparities by capturing how various skin conditions affect the QoL of people with DS and their caregivers and assessing the utility of the DLQI.

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Dermatology Life Quality Index survey in patients with Down syndrome and caregivers

Abstract

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Keywords

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