Abstract
The purpose of this study was to explore health-related quality of life (HRQL) and family impact in the context of an advanced practice registered nurse–delivered telehealth care coordination intervention for children with medical complexity (CMC). This was a secondary outcomes analysis of a randomized controlled trial with 163 families of CMC in an existing medical home. HRQL and family impact were measured using the PedsQL measurement model. Bivariate and analysis of covariance analyses were conducted to explore associations at baseline and the intervention effect over 2 years. Significant predictors of Year 2 child HRQL were baseline HRQL and the presence of both neurologic impairment and technology dependence. There was no significant intervention effect on child HRQL or family impact after 24 months. Care coordination interventions for CMC may need to incorporate family system interventions for optimal outcomes in a range of quality of life domains.
| Original language | English (US) |
|---|---|
| Pages (from-to) | 63-75 |
| Number of pages | 13 |
| Journal | Journal of Pediatric Health Care |
| Volume | 32 |
| Issue number | 1 |
| DOIs | |
| State | Published - Jan 2018 |
Bibliographical note
Publisher Copyright:© 2017 National Association of Pediatric Nurse Practitioners
Keywords
- Care coordination
- children with medical complexity
- health-related quality of life
- telehealth