Positioning the Issues: An Agenda for Future End-of-Life Research, Policy and Practice

Michele Y. Wiese; Roger J. Stancliffe; Philip McCallion; Mary McCarron

doi:10.1007/978-3-030-98697-1_16

Positioning the Issues: An Agenda for Future End-of-Life Research, Policy and Practice

Michele Y. Wiese, Roger J. Stancliffe, Philip McCallion, Mary McCarron

Institute on Community Integration

Research output: Chapter in Book/Report/Conference proceeding › Chapter

Abstract

This concluding chapter brings together the key points offered by the book’s contributors and aims to rally collective thinking and action towards the future. Ensuring that people with intellectual and developmental disability have real opportunities for active participation, social inclusion and self-determination across all dimensions of dying and death requires support—from people with disability themselves, families, researchers, policy makers, practitioners and communities. This chapter puts forward ideas for a practical research, policy and practice agenda to help guide achievement of these outcomes.

Original language	English (US)
Title of host publication	End of Life and People with Intellectual and Developmental Disability
Subtitle of host publication	Contemporary Issues, Challenges, Experiences and Practice
Publisher	Springer International Publishing
Pages	435-463
Number of pages	29
ISBN (Electronic)	9783030986971
ISBN (Print)	9783030986964
DOIs	https://doi.org/10.1007/978-3-030-98697-1_16
State	Published - Jan 1 2022

Bibliographical note

Publisher Copyright:
© The Editor(s) (if applicable) and The Author(s), under exclusive license to Springer Nature Switzerland AG 2022.

Keywords

Assessment
Compassionate communities
Death
Death literacy
Decision-making
Dying
End of life
End-of-life research
Inclusion
Intellectual and developmental disability
Intellectual disability
Policy
Practice
Public health
Research gaps
Self-report

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

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10.1007/978-3-030-98697-1_16

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Wiese, M. Y., Stancliffe, R. J., McCallion, P., & McCarron, M. (2022). Positioning the Issues: An Agenda for Future End-of-Life Research, Policy and Practice. In End of Life and People with Intellectual and Developmental Disability: Contemporary Issues, Challenges, Experiences and Practice (pp. 435-463). Springer International Publishing. https://doi.org/10.1007/978-3-030-98697-1_16

Positioning the Issues: An Agenda for Future End-of-Life Research, Policy and Practice. / Wiese, Michele Y.; Stancliffe, Roger J.; McCallion, Philip et al.
End of Life and People with Intellectual and Developmental Disability: Contemporary Issues, Challenges, Experiences and Practice. Springer International Publishing, 2022. p. 435-463.

Research output: Chapter in Book/Report/Conference proceeding › Chapter

Wiese, MY, Stancliffe, RJ, McCallion, P & McCarron, M 2022, Positioning the Issues: An Agenda for Future End-of-Life Research, Policy and Practice. in End of Life and People with Intellectual and Developmental Disability: Contemporary Issues, Challenges, Experiences and Practice. Springer International Publishing, pp. 435-463. https://doi.org/10.1007/978-3-030-98697-1_16

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Positioning the Issues: An Agenda for Future End-of-Life Research, Policy and Practice

Abstract

Bibliographical note

Keywords

UN SDGs

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