Reconsidering frameworks of Alzheimer's dementia when assessing psychosocial outcomes

Joseph E. Gaugler, Lisa J. Bain, Lauren Mitchell, Jessica Finlay, Sam Fazio, Eric Jutkowitz, Sube Banerjee, Kim Butrum, L. Gitlin, N. Hodgson, Beth Kallmyer, Oanh Le Meyer, Rebecca Logsdon, K. Maslow, Sheryl Zimmerman

Research output: Contribution to journalShort surveypeer-review

45 Scopus citations

Abstract

The purpose of this introductory article to the special issue on psychosocial outcome measures in Alzheimer's & Dementia: Translational Research & Clinical Interventions is to outline new frameworks to more effectively capture and measure the full range of how people living with Alzheimer's dementia and their family caregivers experience the disease process. Specifically, we consider the strengths and weaknesses of alternative perspectives, including person-centered, strength-based, and resilience-focused approaches that may complement and extend the dominant deficit paradigm to reflect the entirety of the dementia experience. Our aim is to encourage innovative methods to measure psychosocial aspects of Alzheimer's dementia and caregiving that have not yet received sufficient attention, including resources (e.g., services and supports) and positive caregiver and care recipient outcomes (e.g., positive mood and adaptation).

Original languageEnglish (US)
Pages (from-to)388-397
Number of pages10
JournalAlzheimer's and Dementia: Translational Research and Clinical Interventions
Volume5
DOIs
StatePublished - 2019

Bibliographical note

Publisher Copyright:
© 2019 The Authors

Keywords

  • Alzheimer's disease
  • Assessment
  • Care
  • Dementia
  • Measurement
  • Person-centered care
  • Positive
  • Psychosocial
  • Resilience
  • Social health
  • Successful aging
  • Well-Being

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